{"id":809768,"date":"2024-02-29T11:04:55","date_gmt":"2024-02-29T05:34:55","guid":{"rendered":"https:\/\/leverageedu.com\/discover\/?p=809768"},"modified":"2024-02-29T11:04:55","modified_gmt":"2024-02-29T05:34:55","slug":"rare-disease-day","status":"publish","type":"post","link":"https:\/\/leverageedu.com\/discover\/trending-events\/rare-disease-day\/","title":{"rendered":"Rare Disease Day: History, Theme, Importance, and Significance"},"content":{"rendered":"\n<p>Rare Disease Day is dedicated to spreading awareness among people suffering from rare <strong>diseases<\/strong> and how to prevent them. It is an annual observance celebrated on 29 February. This day is celebrated to unite people suffering from rare diseases, caretakers, and other <a href=\"https:\/\/leverageedu.com\/blog\/category\/healthcare\/\"><strong>healthcare professionals<\/strong><\/a>. According to the <strong>World Health Organization (WHO)<\/strong>, the frequency of rare diseases should be less than 6.5 to 10 persons per 10000 patients. Stay tuned and continue reading to get complete details about Rare Disease Day 2024!<\/p>\n\n\n\n\n\n\n<p class=\"has-background\" style=\"background-color:#9b51e052\"><strong>Also Read: <\/strong><a href=\"https:\/\/leverageedu.com\/discover\/trending-events\/world-pneumonia-day\/\"><strong>World Pneumonia Day<\/strong><\/a><\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-what-is-a-rare-disease\">What is a Rare Disease?<\/h2>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter\"><img  decoding=\"async\"  src=\"data:image\/png;base64,iVBORw0KGgoAAAANSUhEUgAAAAEAAAABAQMAAAAl21bKAAAAA1BMVEUAAP+KeNJXAAAAAXRSTlMAQObYZgAAAAlwSFlzAAAOxAAADsQBlSsOGwAAAApJREFUCNdjYAAAAAIAAeIhvDMAAAAASUVORK5CYII=\"  alt=\"Rare Disease Day 2024\"  class=\" pk-lazyload\"  data-pk-sizes=\"auto\"  data-pk-src=\"https:\/\/lh7-us.googleusercontent.com\/8PG4FgXUJNQeN20veA8SxMPZysT45UO5mBr7GU04MUdZVgAb8ahy-XhwSLtvP1Bg7C4dnCPgfD5K4EZ8XjC02DB22Gx1ohhnlj753PjlhsHgkSZyQDRymXv9jbp67Yti23lrLrDw4A-Bb8gkExPmvOc\" ><figcaption class=\"wp-element-caption\">Source: Wikipedia<\/figcaption><\/figure>\n<\/div>\n\n\n<p><\/p>\n\n\n\n<p>A rare disease is defined as a medical condition that affects less number of people. The quantity varies depending on the region. In general, the USA considers a disease to be rare if it affects less than 200000 people. However, in the European Union, rare diseases are the diseases that affect less than 50 people in 100000 of the population.&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"Rare Disease Day Official Video 2024\" width=\"1200\" height=\"675\" src=\"https:\/\/www.youtube.com\/embed\/zEQ828Lkxac?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><figcaption class=\"wp-element-caption\">Source: rarediseaseday<\/figcaption><\/figure>\n\n\n\n<p>As per an estimate, around 300 million people in the world have to deal with rare diseases. There are approximately 7000 rare diseases in the world and some are still being discovered.<\/p>\n\n\n\n<p>Here is the list of some rare diseases:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Alkaptonuria<\/li>\n\n\n\n<li>Gaucher Disease<\/li>\n\n\n\n<li>Muscular Dystrophy<\/li>\n\n\n\n<li>CHILD Syndrome<\/li>\n\n\n\n<li>Aarskog Syndrome<\/li>\n\n\n\n<li>Cystic Fibrosis<\/li>\n<\/ul>\n\n\n\n<figure class=\"wp-block-embed is-type-rich is-provider-twitter wp-block-embed-twitter\"><div class=\"wp-block-embed__wrapper\">\n<blockquote class=\"twitter-tweet\" data-width=\"550\" data-dnt=\"true\"><p lang=\"en\" dir=\"ltr\">\ud83d\udea8 IT&#39;S RARE DISEASE DAY GLOBALLY! \ud83d\udea8 Join us marking <a href=\"https:\/\/twitter.com\/hashtag\/RareDiseaseDay?src=hash&amp;ref_src=twsrc%5Etfw\">#RareDiseaseDay<\/a> 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! <a href=\"https:\/\/twitter.com\/hashtag\/ShareYourColours?src=hash&amp;ref_src=twsrc%5Etfw\">#ShareYourColours<\/a> <a href=\"https:\/\/t.co\/2fRNqQWe6n\">pic.twitter.com\/2fRNqQWe6n<\/a><\/p>&mdash; Rare Disease Day (@rarediseaseday) <a href=\"https:\/\/twitter.com\/rarediseaseday\/status\/1763066622275736004?ref_src=twsrc%5Etfw\">February 29, 2024<\/a><\/blockquote><script async src=\"https:\/\/platform.twitter.com\/widgets.js\" charset=\"utf-8\"><\/script>\n<\/div><\/figure>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-when-is-rare-disease-day-2024-celebrated\">When is Rare Disease Day 2024 Celebrated?<\/h2>\n\n\n\n<p>Rare Disease Day 2024 is celebrated on 29 February 2024. Organization for Rare Diseases India also known as ORDI is set up to offer a collective voice for patients suffering from rare diseases. As per the study conducted by ORDI, there are around 263 rare diseases in India affecting a large Indian population.<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"Preparing for Rare Disease Day 2024\" width=\"1200\" height=\"675\" src=\"https:\/\/www.youtube.com\/embed\/sOhgvE4z28s?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><figcaption class=\"wp-element-caption\">Source: National Press Foundation<\/figcaption><\/figure>\n\n\n\n<p>Rare Disease Day is celebrated in leap years on 29 February. The need to establish a platform to raise awareness about rare diseases and to tackle the difficulty of diagnosis of rare diseases was established in the 1980s.&nbsp;<\/p>\n\n\n\n<p>In 1999, the European Organisation for Rare Diseases (EURORDIS) dedicated a special day to raise awareness about rare diseases across Europe. It was first celebrated in 11 European countries and marked the initiation of a global movement to spread awareness in the healthcare sector.<\/p>\n\n\n\n<p>In 2008, the need to recognize Rare Disease Day went global and many other countries joined the event to make it an International day.<\/p>\n\n\n\n<p>In 2015, Rare Disease Day was officially declared an International Day by the United General Assembly thus solidifying the significance of this day.<\/p>\n\n\n\n<p class=\"has-background\" style=\"background-color:#9b51e045\"><strong>Also Read: <\/strong><a href=\"https:\/\/leverageedu.com\/discover\/trending-events\/important-days\/world-cancer-day\/\"><strong>World Cancer Day<\/strong><\/a><\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-rich is-provider-twitter wp-block-embed-twitter\"><div class=\"wp-block-embed__wrapper\">\n<blockquote class=\"twitter-tweet\" data-width=\"550\" data-dnt=\"true\"><p lang=\"en\" dir=\"ltr\">\ud83c\udf0f Rare Disease Day begins in Oceania!<br>From Australia&#39;s deserts to Micronesia&#39;s islands, the continent unites to shed light on rare diseases!<br>Join the global movement for awareness and support! \ud83c\udf1f <a href=\"https:\/\/twitter.com\/hashtag\/RareDiseaseDay?src=hash&amp;ref_src=twsrc%5Etfw\">#RareDiseaseDay<\/a> <a href=\"https:\/\/twitter.com\/hashtag\/LightUpForRare?src=hash&amp;ref_src=twsrc%5Etfw\">#LightUpForRare<\/a> <a href=\"https:\/\/twitter.com\/hashtag\/ShareYourColours?src=hash&amp;ref_src=twsrc%5Etfw\">#ShareYourColours<\/a> <a href=\"https:\/\/twitter.com\/hashtag\/Awareness?src=hash&amp;ref_src=twsrc%5Etfw\">#Awareness<\/a> <a href=\"https:\/\/t.co\/05Ddk0DzeD\">pic.twitter.com\/05Ddk0DzeD<\/a><\/p>&mdash; Rare Disease Day (@rarediseaseday) <a href=\"https:\/\/twitter.com\/rarediseaseday\/status\/1762825147713564844?ref_src=twsrc%5Etfw\">February 28, 2024<\/a><\/blockquote><script async src=\"https:\/\/platform.twitter.com\/widgets.js\" charset=\"utf-8\"><\/script>\n<\/div><\/figure>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-rare-disease-day-theme-2024\">Rare Disease Day Theme 2024<\/h2>\n\n\n\n<p>As per <a href=\"https:\/\/www.rarediseaseday.org\/\"><strong>rarediseaseday.org<\/strong><\/a>, a rare disease is rare if it affects fewer than 1 in 2000 people. Out of all the rare diseases, 72% of them are <strong>genetic diseases<\/strong>.<\/p>\n\n\n\n<p>The theme for Rare Disease Day 2024 is \u201cShare Your Colours\u201d. So, you can join the community and share your pictures with your thoughts with<strong> #LIGHTUPFORRARE<\/strong>. Light up your space and create a Global Chain of Lights on this Rare Disease Day to spread awareness about rare diseases and the difficulty in diagnosis of rare diseases.<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter\"><img  decoding=\"async\"  src=\"data:image\/png;base64,iVBORw0KGgoAAAANSUhEUgAAAAEAAAABAQMAAAAl21bKAAAAA1BMVEUAAP+KeNJXAAAAAXRSTlMAQObYZgAAAAlwSFlzAAAOxAAADsQBlSsOGwAAAApJREFUCNdjYAAAAAIAAeIhvDMAAAAASUVORK5CYII=\"  alt=\"Light Up for Rare\"  class=\" pk-lazyload\"  data-pk-sizes=\"auto\"  data-pk-src=\"https:\/\/lh7-us.googleusercontent.com\/lRJ95kZWSAY6EOk6w2NcQ3zoKGLSav1ZgtEGRKG8VfktkoV5E46iChbhPyVM9hMLUQOXCXHi7N-wd8DzbiuKA_MfvmJOfFBtP7erp2B0oKq44qXkqMj_08qMrgSo-v22NWLyFlhloB_Y1MPI_jFMdd4\" ><figcaption class=\"wp-element-caption\">Source: rarediseaseday.org<\/figcaption><\/figure>\n<\/div>\n\n\n<h2 class=\"wp-block-heading\" id=\"h-importance-of-rare-disease-day\">Importance of Rare Disease Day<\/h2>\n\n\n\n<p>This day is celebrated to raise awareness in society about various aspects of rare diseases including the following:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Early diagnosis and treatment.<\/li>\n\n\n\n<li>Increased research and development in the healthcare sector.<\/li>\n\n\n\n<li>Provide improved access to care to patients suffering from rare diseases.<\/li>\n\n\n\n<li>Support for patients and their families.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-background\" style=\"background-color:#9b51e042\"><strong>Also Read: <\/strong><a href=\"https:\/\/leverageedu.com\/discover\/trending-events\/world-brain-tumor-day\/\"><strong>World Brain Tumor Day<\/strong><\/a><\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-significance\">Significance<\/h2>\n\n\n\n<p>Rare Disease Day is very important as it advocates for the concerns of people who are suffering from rare diseases and raises awareness of them.<\/p>\n\n\n\n<ol class=\"wp-block-list\">\n<li>Because they are rare, they are difficult to diagnose and sometimes misdiagnosed and poorly understood. This could ultimately lead to the wrong medical treatment. Rare Disease Day raises awareness of them and their significance among the general public as well as among medical professionals.<\/li>\n\n\n\n<li>Raising awareness promotes empathy and comprehension, which improves social support and lessens the stigma associated with having a rare illness.<\/li>\n<\/ol>\n\n\n\n<p class=\"has-text-align-center has-medium-font-size\"><strong>Related Blogs<\/strong><\/p>\n\n\n\n<figure class=\"wp-block-table is-style-stripes\"><table><tbody><tr><td class=\"has-text-align-center\" data-align=\"center\"><a href=\"https:\/\/leverageedu.com\/discover\/trending-events\/important-days\/central-excise-day\/\"><strong>Central Excise Day<\/strong><\/a><\/td><td class=\"has-text-align-center\" data-align=\"center\"><a href=\"https:\/\/leverageedu.com\/discover\/trending-events\/important-days\/international-mother-language-day\/\"><strong>International Mother Language Day&nbsp;<\/strong><\/a><\/td><\/tr><tr><td class=\"has-text-align-center\" data-align=\"center\"><a href=\"https:\/\/leverageedu.com\/discover\/trending-events\/important-days\/national-science-day\/\"><strong>National Science Day<\/strong><\/a><\/td><td class=\"has-text-align-center\" data-align=\"center\"><a href=\"https:\/\/leverageedu.com\/discover\/trending-events\/important-days\/world-day-of-social-justice\/\"><strong>World Day of Social Justice&nbsp;<\/strong><\/a><\/td><\/tr><tr><td class=\"has-text-align-center\" data-align=\"center\"><a href=\"https:\/\/leverageedu.com\/discover\/trending-events\/important-days\/national-womens-day\/\"><strong>National Women\u2019s Day<\/strong><\/a><\/td><td class=\"has-text-align-center\" data-align=\"center\"><a href=\"https:\/\/leverageedu.com\/discover\/trending-events\/important-days\/safer-internet-day\/\"><strong>Safer Internet Day<\/strong><\/a><\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-faqs\">FAQs<\/h2>\n\n\n\n<div class=\"schema-faq wp-block-yoast-faq-block\"><div class=\"schema-faq-section\" id=\"faq-question-1707916800241\"><strong class=\"schema-faq-question\">When is World Rare Disease Day?<\/strong> <p class=\"schema-faq-answer\">World Rare Disease Day is celebrated at the end of February. This year it will be celebrated on 29 February 2024. It is a global annual observance celebrated to promote awareness about the rare disease and its diagnosis.\u00a0<\/p> <\/div> <div class=\"schema-faq-section\" id=\"faq-question-1707916804258\"><strong class=\"schema-faq-question\">What is the theme for Rare Disease Day 2024?<\/strong> <p class=\"schema-faq-answer\">The theme for Rare Disease Day 2024 is \u201cShare Your Colours.\u201d The rarediseaseday.org hosts an event to group people around the world \u201cLight Up for Rare.\u201d<\/p> <\/div> <div class=\"schema-faq-section\" id=\"faq-question-1707916805160\"><strong class=\"schema-faq-question\">When will the FDA host Rare Disease Day 2024?<\/strong> <p class=\"schema-faq-answer\">FDA will host a virtual meeting on 1 March 2024 on the occasion of Rare Disease Day to celebrate Rare Disease Week. This year&#8217;s Rare Disease Day is dedicated to patients and healthcare professionals.<\/p> <\/div> <\/div>\n\n\n\n<p>For more information about such informative articles, check the <a href=\"https:\/\/leverageedu.com\/discover\/category\/trending-events\/\"><strong>trending events<\/strong><\/a> page of <a href=\"https:\/\/leverageedu.com\/\"><strong>Leverage Edu<\/strong><\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"Rare Disease Day is dedicated to spreading awareness among people suffering from rare diseases and how to prevent&hellip;\n","protected":false},"author":97,"featured_media":809775,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"editor_notices":[],"footnotes":""},"categories":[455,400],"tags":[],"class_list":{"0":"post-809768","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-important-days","8":"category-trending-events"},"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.3 (Yoast SEO v27.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Rare Disease Day: History, Theme, Importance, and Significance - Leverage Edu Discover<\/title>\n<meta name=\"description\" content=\"Read this article to get complete information about Rare Disease Day 2024. 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Know what is rare disease, its theme, and importance of this day!\" \/>\n<meta property=\"og:url\" content=\"https:\/\/leverageedu.com\/discover\/trending-events\/rare-disease-day\/\" \/>\n<meta property=\"og:site_name\" content=\"Leverage Edu Discover\" \/>\n<meta property=\"article:published_time\" content=\"2024-02-29T05:34:55+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/blogassets.leverageedu.com\/media\/uploads\/sites\/9\/2024\/02\/27101038\/Rare-Disease-Day-2024.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1024\" \/>\n\t<meta property=\"og:image:height\" content=\"640\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Kajal Thareja\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Kajal Thareja\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minutes\" \/>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"Rare Disease Day: History, Theme, Importance, and Significance - Leverage Edu Discover","description":"Read this article to get complete information about Rare Disease Day 2024. 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I have 2-years of writing experience in Ed-tech (digital marketing) company. I am passionate towards writing blogs and am on the path of discovering true potential professionally in the field of content marketing. I am engaged in writing creative content for students which is simple yet creative and engaging and leaves an impact on the reader's mind.","sameAs":["https:\/\/www.linkedin.com\/in\/kajal-thareja-6b600a191"],"honorificPrefix":"Ms","birthDate":"1998-11-08","gender":"Female","url":"https:\/\/leverageedu.com\/discover\/author\/kajal\/"},{"@type":"Question","@id":"https:\/\/leverageedu.com\/discover\/trending-events\/rare-disease-day\/#faq-question-1707916800241","position":1,"url":"https:\/\/leverageedu.com\/discover\/trending-events\/rare-disease-day\/#faq-question-1707916800241","name":"When is World Rare Disease Day?","answerCount":1,"acceptedAnswer":{"@type":"Answer","text":"World Rare Disease Day is celebrated at the end of February. This year it will be celebrated on 29 February 2024. It is a global annual observance celebrated to promote awareness about the rare disease and its diagnosis.\u00a0","inLanguage":"en-US"},"inLanguage":"en-US"},{"@type":"Question","@id":"https:\/\/leverageedu.com\/discover\/trending-events\/rare-disease-day\/#faq-question-1707916804258","position":2,"url":"https:\/\/leverageedu.com\/discover\/trending-events\/rare-disease-day\/#faq-question-1707916804258","name":"What is the theme for Rare Disease Day 2024?","answerCount":1,"acceptedAnswer":{"@type":"Answer","text":"The theme for Rare Disease Day 2024 is \u201cShare Your Colours.\u201d The rarediseaseday.org hosts an event to group people around the world \u201cLight Up for Rare.\u201d","inLanguage":"en-US"},"inLanguage":"en-US"},{"@type":"Question","@id":"https:\/\/leverageedu.com\/discover\/trending-events\/rare-disease-day\/#faq-question-1707916805160","position":3,"url":"https:\/\/leverageedu.com\/discover\/trending-events\/rare-disease-day\/#faq-question-1707916805160","name":"When will the FDA host Rare Disease Day 2024?","answerCount":1,"acceptedAnswer":{"@type":"Answer","text":"FDA will host a virtual meeting on 1 March 2024 on the occasion of Rare Disease Day to celebrate Rare Disease Week. This year's Rare Disease Day is dedicated to patients and healthcare professionals.","inLanguage":"en-US"},"inLanguage":"en-US"}]}},"acf":[],"_links":{"self":[{"href":"https:\/\/leverageedu.com\/discover\/wp-json\/wp\/v2\/posts\/809768","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/leverageedu.com\/discover\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/leverageedu.com\/discover\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/leverageedu.com\/discover\/wp-json\/wp\/v2\/users\/97"}],"replies":[{"embeddable":true,"href":"https:\/\/leverageedu.com\/discover\/wp-json\/wp\/v2\/comments?post=809768"}],"version-history":[{"count":0,"href":"https:\/\/leverageedu.com\/discover\/wp-json\/wp\/v2\/posts\/809768\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/leverageedu.com\/discover\/wp-json\/wp\/v2\/media\/809775"}],"wp:attachment":[{"href":"https:\/\/leverageedu.com\/discover\/wp-json\/wp\/v2\/media?parent=809768"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/leverageedu.com\/discover\/wp-json\/wp\/v2\/categories?post=809768"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/leverageedu.com\/discover\/wp-json\/wp\/v2\/tags?post=809768"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}